Does Anyone Actually Listen?!


I’m not asleep because I’m in pain.  Tonight, my team was short players and I had to play every round for the entire evening.  My lower legs once again hurt.

I’ve had blood work.  All my vitamins and minerals are fine, so that isn’t the source of the pain.

I take 100mg sumatriptan migraine medications.  Sumatriptan is a vasoconstrictor and 100mg is the highest dose of sumatriptan one can take at a single time.  Vasoconstrictors work by narrowing the blood vessels all over your body.  Side effects include things like feeling cold, feeling stiff, feeling like you aren’t getting enough blood to muscles when you use them.  It can also cause heart attacks and strokes.

My orthopedist today said he didn’t know what was wrong with my lower legs, but he suspected it was vascular in nature.  Symptoms include pain, swelling, redness, a feeling of warmness, and spots.  I have one of these symptoms; pain.  However, if I’m having trouble getting the blood out of my legs, vasoconstrictors should increase the pain.  Especially 1oomg sumatriptan because that’s some serious stuff and yet, it doesn’t.

That alone seems to rule out a vascular problem.  Oh and the lack of other symptoms associated with vascular problems.

Furthermore, the cortisone injections into my SI joints and nerves actually got rid of the pain for about a month.  If I had a vascular problem or a deficiency of vitamins or minerals, cortisone shouldn’t have relieved my pain.

Maybe it was a placebo effect.  It isn’t impossible.  Except I didn’t expect it to work.  Placebo effect happens when you expect a medication to help.  I’m not sure I have ever heard of a case in which a patient expected a treatment to fail and yet found relief from it due to the placebo effect.

I’m supposed to have physical therapy tomorrow.  It did wonders for my back.  It isn’t doing shit for my lower leg pain.  As a matter of fact, the activities that we do for my physical therapy make the lower leg pain happen.

My physical therapist keeps telling me I have to give it time, it’ll work.  However, after four weeks or whatever, I’m not seeing any improvement in my legs, only my back.  My orthopedist says he doesn’t know how to fix the problem because he can’t figure out what the problem is.  I doubt it’s psychological in nature, but I’m not sure how to prove that.  I doubt even I would subconsciously make the decision to have this sort of pain.

Tonight, I want to cry again.  Mostly from the pain.  On a scale of 1 to 10, it’s about a 15.  I’ve had ovarian cysts rupture that didn’t hurt this badly.  The only way I can describe the pain is it feels like my lower legs are being crushed and the bones are being broken.  It’s a sharp, throbbing pain that takes a few days to go down.  And once again, I feel like no one is listening to me…

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14 Comments

  1. Sandy Hall

     /  October 27, 2016

    Sill question, but have you tried acupuncture?

    Liked by 1 person

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  2. Edie

     /  October 27, 2016

    Have you tried heat? Just spitballing here…

    Liked by 1 person

    Reply
  3. Have they tried Refleology? Sonic Massage Therapy on your legs? And have they checked you for peripheral artery disease? Just a couple of thoughts

    Liked by 1 person

    Reply
    • No, no, and no. ☹️️

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      • Well…I would definitely bring those up with your doctor – the two different therapies are not invasive and could help with the pain – as for the PAD (peripheral thingy) – they really need to check you for that because it can become serious if that is what you have.

        Liked by 1 person

  4. Edie

     /  October 27, 2016

    As well, there’s an old preventative migraine medication that used to be used for depression that I’ve been taking faithfully for well over 10 years. It’s called Amitriptylene. It was first tested for depression, but relieved migraines much better…most doctors gloss over it for the latest drugs, but honestly, after taking every new drug on the market, this is the only one that worked for me. I went from having migraines that lasted for six weeks at a time, to only having a mild one once or twice a year. It was honestly a miracle drug for me! Maybe trying something different that isn’t a vasoconstrictor might help?

    Liked by 1 person

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  5. T Vogt

     /  October 27, 2016

    Having leg pain due to my MS when the DR put me on Lyrica when it first came out I started having a large black spot in one eye.. the Dr told me repeatedly that it could not possibly be a pain med or any med not playing well with others sometimes Dr’s throw meds at you and never consider how many you take, can one cause a condition, possible to contact a team that contains a natural-path and a pain specialist added to your team?? You may be being OVER MEDICATED. or suffering from a cross reaction between something. Have you had an MRI to see if there is a nerve bundle that is flaring when you are having a major pain episode? Have they attempted Morhine? I have been put on MS Cotin BID 15 mg and then Percocet 7.5/325 mg for break thru pain I was so zoned out I said wait guys I have to function ! I went out and got a TENS UNIT and started experimenting and found that when pain was in my leg I put a electrode on the pain area and started a slow increase of zap and moved it up and up as it failed over a few days and found a spot between my shoulder blades and suddenly a pain in one leg was lessened alot, then moved it to one side of spine and both legs were blocked pain signal to brain. Tens have also been used at temples and base of skull and lessened head pain..I have visual auras and sparkles they claim are silent migraine..I think it’s something else and found that across the brow over each eye in 15 minutes the visual disturbances stopped.. You are in prayers and hopefully someone will accurately diagnose what the issue is.

    Liked by 1 person

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    • I have a good electroshock therapy unit that I have been using. It does help, but I have to ignore the timer.

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      • t vogt

         /  October 28, 2016

        Yea on a TEN tran-sdermal Electroshocking unit, you can set it to continuous at a lower level once you get the right spot and just keep it going.. I have at times had it going till the battery is dead and then change batteries.. worn thru sleep.. etc..

        Liked by 1 person

  6. patricia lupien

     /  October 28, 2016

    Have you seen a neurologist? I’m going thru same thing , topomax and lyrica or gabapentin I feel will help you tremendous. I’m going for a epidural injections for my pain on Nov 4th . I have pain all down my left side especially my arm from a nerve in my neck. I was diagnosed with peripheral neuropathy. I have also just started experimenting with cbc oil .I vape it. It doesn’t help especially with sleep. Good luck .

    Liked by 1 person

    Reply
    • Topamax is one of the “big four” preventive migraine meds. I’ve used it before and it didn’t work for me as a migraine suppressor and I had some funky side effects. Gabapentin doesn’t work for me for any pain. I’ve been on Lyrica before when I had shingles and didn’t find it helpful.

      We ruled out peripheral neuropathy because I have leg pain but not feet pain. Also, mine feels like a crushing sensation as opposed to a burning, stabbing, or stinging sensation.

      My neurologist is my next stop for the pain if my general practioner can’t dig something up.

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